Advocate’s Blog
BREAKING NEWS – GLOBAL VIRTUAL MSA CONFERENCE, SEPTEMBER 19, 2020 – FREE, INFORMATIVE & SAFE
Defeat MSA Down Under, Defeat MSA Alliance and MSA United International Consortium associated charities are excited to announce the world’s first MSA virtual conference! The Global MSA Virtual Support Symposium is FREE FOR ALL and will take place on Saturday, the 19th...
“Defeat MSA Down Under Announces New Global Research Consortium”
FOR IMMEDIATE RELEASE, 7/16/20 “Defeat MSA Down Under Announces New Global Research Consortium” DETROIT, MI—Defeat MSA Australia and New Zealand announces the formation of a new global consortium of charities for people living with Multiple System Atrophy. The...
THANK YOU TO ALL OUR RECENT VOLUNTEERS!
A BIG BIG THANK YOU TO ALL OUR RECENT VOLUNTEERS! Together, We Can and Will Defeat MSA Forever!! SANDRA BETTENHAUSEN MARY BETH MCCORD FLYNN MICHAEL SMITH DAMIEN GAFFNEY MIKE BOYLAN, JR JEANNINE BRAGG CRAIG STEVENS SUSAN YOUNG ROSEMARY DU MONT OLIVIA ROMANO CHERIE...
MSA BLOGS
Caregiver’s Blog
“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)
Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip. Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...
“But I’d of had to miss the dance…” – Anne Kastelic (Caregiver, Cleveland, Ohio)
“But I’d of had to miss the dance…” – Anne Kastelic (Caregiver, Cleveland, Ohio) Today I opened Facebook to see a call for a caregiver writing opportunity for Defeat MSA’s “Caregiver’s Blog.” The idea is to share our story in an effort to help others on the MSA...
4th Annual Virtual All-Community MSA Conference – Multiple MSA Experts & Free!
Researcher’s Blog
SEMINAR: “A-Syn Conformational Strains and Patient Perspective”
MSA Researcher Raphaella So, PhD candidate (Toronto), and Defeat MSA Patient Advocate Beverly K. Wilson offer some informed insights on Multiple System Atrophy in a recent talk sponsored by our friends at Cure Parkinson’s UK. Beverly’s presentation describes the...
“A Path Forward” – Dr. Amanda Woerman (Univ. of Massachusetts, Amherst)
Multiple system atrophy (MSA) is a progressive neurodegenerative disease that affects a key area of the brain responsible for regulating vital bodily functions. As a result, patients with MSA develop orthostatic hypotension (a drop in blood pressure when moving from...
“Sticking With MSA” -Dr. Wouter Peelearts (Researcher, Michigan)
Sticking with Multiple System Atrophy
Multiple System Atrophy (MSA) is a rare brain disorder that until recently was largely ignored by the research community. MSA is a rapidly progressing neurodegenerative disease caused by a decline of the body’s most basic and vital functions including breathing, digestion, urination, controlling blood pressure and movement.
Patient’s Blog
“Finding Balance with MSA” – Joshua Calvert (Patient, Australia)
My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24 years both in Australia and the United Kingdom. I have been married for 20 years and have a 14-year-old son. I live in Illawarra...
4th Annual Virtual All-Community MSA Conference – Multiple MSA Experts & Free!
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BREAKING NEWS – GLOBAL VIRTUAL MSA CONFERENCE, SEPTEMBER 19, 2020 – FREE, INFORMATIVE & SAFE
Defeat MSA Down Under, Defeat MSA Alliance and MSA United International Consortium associated charities are excited to...