by ximpd | Apr 5, 2019 | Medical Research
Multiple System Atrophy (MSA) is a rare brain disorder that until recently was largely ignored by the research community. MSA is a rapidly progressing neurodegenerative disease caused by a decline of the body’s most basic and vital functions including breathing,...
by defeatmsa | Nov 21, 2020 | Uncategorized
DEFEAT MSA UNITED FACEBOOK GROUPS & VIDEO CHAT SUPPORT MEETINGS GUIDELINES (These policies are subject to change without public notice. Your continued membership in a Defeat MSA Alliance associated group implies consent to these policies.) 1) CONTENT: Content on...
by ximpd | Aug 13, 2020 | Advocacy Blog, Advocate's Blog, News
Defeat MSA Down Under, Defeat MSA Alliance and MSA United International Consortium associated charities are excited to announce the world’s first MSA virtual conference! The Global MSA Virtual Support Symposium is FREE FOR ALL and will take place on Saturday, the 19th...
by ximpd | Jul 19, 2020 | Advocacy Blog, Advocate's Blog
https://defeatmsa.org.nz/wp-content/uploads/2020/07/DefeatMSAEventVideo-v42.mp4...
by ximpd | Jul 17, 2020 | Advocacy Blog, Advocate's Blog
FOR IMMEDIATE RELEASE, 7/16/20 “Defeat MSA Down Under Announces New Global Research Consortium” DETROIT, MI—Defeat MSA Australia and New Zealand announces the formation of a new global consortium of charities for people living with Multiple System Atrophy. The...
by ximpd | Jun 2, 2020 | Advocacy Blog, Advocate's Blog
A BIG BIG THANK YOU TO ALL OUR RECENT VOLUNTEERS! Together, We Can and Will Defeat MSA Forever!! SANDRA BETTENHAUSEN MARY BETH MCCORD FLYNN MICHAEL SMITH DAMIEN GAFFNEY MIKE BOYLAN, JR JEANNINE BRAGG CRAIG STEVENS SUSAN YOUNG ROSEMARY DU MONT OLIVIA ROMANO CHERIE...
by ximpd | Jun 2, 2020 | Medical Research
MSA Researcher Raphaella So, PhD candidate (Toronto), and Defeat MSA Patient Advocate Beverly K. Wilson offer some informed insights on Multiple System Atrophy in a recent talk sponsored by our friends at Cure Parkinson’s UK. Beverly’s presentation describes the...
by ximpd | May 19, 2020 | Advocate's Blog
Our beloved MSA Awareness Shoe is back on the road after helping to #KickMSA in Brisbane, Australia and surrounding areas! Thank you Pamela and Richard Woolford for hosting our dear globetrotting shoe! Now it returns to home base, Melbourne to the care of Olivia...
by defeatmsa | Mar 23, 2020 | Patient Support Blog
My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24 years both in Australia and the United Kingdom. I have been married for 20 years and have a 14-year-old son. I live in Illawarra...
by defeatmsa | Feb 27, 2020 | Caregivers Blog
Caregiver Blog Post #2 The road to diagnosis… Are we there yet?…No Now?…No When are we going to get there? Said anyone who has taken a road trip. Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of “possible/probable...
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