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“Sticking With MSA” -Dr. Wouter Peelearts (Researcher, Michigan)

“Sticking With MSA” -Dr. Wouter Peelearts (Researcher, Michigan)

by ximpd | Apr 5, 2019 | Medical Research

Multiple System Atrophy (MSA) is a rare brain disorder that until recently was largely ignored by the research community. MSA is a rapidly progressing neurodegenerative disease caused by a decline of the body’s most basic and vital functions including breathing,...
3rd ANNUAL VIRTUAL MSA CONFERENCE – SEPTEMBER & FREE

3rd ANNUAL VIRTUAL MSA CONFERENCE – SEPTEMBER & FREE

by ximpd | Aug 8, 2022 | Advocacy Blog, Advocate's Blog, Caregivers Blog, Medical Research, News, Patient Support Blog

ONLINE GROUPS & VIDEO CHAT SUPPORT SESSIONS GUIDELINES

ONLINE GROUPS & VIDEO CHAT SUPPORT SESSIONS GUIDELINES

by defeatmsa | Nov 21, 2020 | Uncategorized

DEFEAT MSA UNITED FACEBOOK GROUPS  & VIDEO CHAT SUPPORT MEETINGS GUIDELINES (These policies are subject to change without public notice. Your continued membership in a Defeat MSA Alliance associated group implies consent to these policies.) 1) CONTENT: Content on...
BREAKING NEWS – GLOBAL VIRTUAL MSA CONFERENCE, SEPTEMBER 19, 2020 – FREE, INFORMATIVE & SAFE

BREAKING NEWS – GLOBAL VIRTUAL MSA CONFERENCE, SEPTEMBER 19, 2020 – FREE, INFORMATIVE & SAFE

by ximpd | Aug 13, 2020 | Advocacy Blog, Advocate's Blog, News

Defeat MSA Down Under, Defeat MSA Alliance and MSA United International Consortium associated charities are excited to announce the world’s first MSA virtual conference! The Global MSA Virtual Support Symposium is FREE FOR ALL and will take place on Saturday, the 19th...
Is it All in the Head? – Diagnosis & Defeat MSA

Is it All in the Head? – Diagnosis & Defeat MSA

by ximpd | Jul 19, 2020 | Advocacy Blog, Advocate's Blog

https://defeatmsa.org.nz/wp-content/uploads/2020/07/DefeatMSAEventVideo-v42.mp4...
“Defeat MSA Down Under Announces New Global Research Consortium”

“Defeat MSA Down Under Announces New Global Research Consortium”

by ximpd | Jul 17, 2020 | Advocacy Blog, Advocate's Blog

FOR IMMEDIATE RELEASE, 7/16/20 “Defeat MSA Down Under Announces New Global Research Consortium” DETROIT, MI—Defeat MSA Australia and New Zealand announces the formation of a new global consortium of charities for people living with Multiple System Atrophy. The...
THANK YOU TO ALL OUR RECENT VOLUNTEERS!

THANK YOU TO ALL OUR RECENT VOLUNTEERS!

by ximpd | Jun 2, 2020 | Advocacy Blog, Advocate's Blog

A BIG BIG THANK YOU TO ALL OUR RECENT VOLUNTEERS! Together, We Can and Will Defeat MSA Forever!! SANDRA BETTENHAUSEN MARY BETH MCCORD FLYNN MICHAEL SMITH DAMIEN GAFFNEY MIKE BOYLAN, JR JEANNINE BRAGG CRAIG STEVENS SUSAN YOUNG ROSEMARY DU MONT OLIVIA ROMANO CHERIE...
SEMINAR: “A-Syn Conformational Strains and Patient Perspective”

SEMINAR: “A-Syn Conformational Strains and Patient Perspective”

by ximpd | Jun 2, 2020 | Medical Research

MSA Researcher Raphaella So, PhD candidate (Toronto), and Defeat MSA Patient Advocate Beverly K. Wilson offer some informed insights on Multiple System Atrophy in a recent talk sponsored by our friends at Cure Parkinson’s UK. Beverly’s presentation describes the...
On the Road Again – MSA Awareness Shoe Departs Brisbane for Melbourne!

On the Road Again – MSA Awareness Shoe Departs Brisbane for Melbourne!

by ximpd | May 19, 2020 | Advocate's Blog

Our beloved MSA Awareness Shoe is back on the road after helping to #KickMSA in Brisbane, Australia and surrounding areas! Thank you Pamela and Richard Woolford for hosting our dear globetrotting shoe! Now it returns to home base, Melbourne to the care of Olivia...
“Finding Balance with MSA” – Joshua Calvert (Patient, Australia)

“Finding Balance with MSA” – Joshua Calvert (Patient, Australia)

by defeatmsa | Mar 23, 2020 | Patient Support Blog

My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24 years both in Australia and the United Kingdom. I have been married for 20 years and have a 14-year-old son. I live in Illawarra...
“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)

“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)

by defeatmsa | Feb 27, 2020 | Caregivers Blog

Caregiver Blog Post #2 The road to diagnosis… Are we there yet?…No Now?…No When are we going to get there? Said anyone who has taken a road trip.  Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of “possible/probable...
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Recent Posts

  • 3rd ANNUAL VIRTUAL MSA CONFERENCE – SEPTEMBER & FREE
  • ONLINE GROUPS & VIDEO CHAT SUPPORT SESSIONS GUIDELINES
  • BREAKING NEWS – GLOBAL VIRTUAL MSA CONFERENCE, SEPTEMBER 19, 2020 – FREE, INFORMATIVE & SAFE
  • Is it All in the Head? – Diagnosis & Defeat MSA
  • “Defeat MSA Down Under Announces New Global Research Consortium”

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