Since our founding we have made great strides to develop as a charity with the aim to become a viable organization that helps patients while moving the cause forward.
Below you’ll find some recent achievements and successes as a charity.
August 2010 | Campaign To Keep Midodrine Available in US (Successful). |
April 2011 | Tim’s MSA Shoe Awareness Project, Detroit Monuments, Colleges, Businesses and Restaurants |
April 2012 | Volunteer and Fundraising Boards Development |
May 2012 | Initial Website Development: www.MovingTodayforMSA.org |
June 2012 | Brochure and Business Card Development Donation |
July 2012 | Facebook Page Development: JGF Foundation |
August 4, 2012 | Founding, The JGF Project for MSA (Joe’s Birthday) |
October 2012 | Joseph G. Fortier Foundation Incorporation: State of Michigan |
October 2012 | Represented MSA patients in Congress to approve Droxidopa/Northera |
January 21, 2013 | Joseph G. Fortier Passes Away |
February, 2013 | Initial Foundation Donations Totalling: $6,000 |
March 2013 | Offices and PO Box Donation |
May 2013 | MSA Device Loaner Program Begins |
August 2013 | IRS Non-Profit 501c3 Approved for Joseph G. Fortier Foundation |
December 2013 | Medical Research Advisors Meeting |
January 2014 | Director P. Fortier offers testimony on efficacy of Droxidopa/Northera |
February 2014 | Director P. Fortier represented Defeat MSA at the Kerry Simon Fight MSA Fundraiser (Cleveland Clinic, Las Vegas) |
February 2014 | Director P. Fortier represented Defeat MSA at the MSA Charities and Stakeholders Meeting (Las Vegas, NV) |
February 2014 | Droxidopa/Northera Approved (Orthostatic Hypotension) |
March 2014 | Website Donation (6k), DefeatMSA.org |
March 2014 | Foundation Logo and Letterhead Donation |
March 2014 | Tim’s MSA Shoe Returns to Detroit, State Judges Conference, City of Grand Rapids, Detroit Pistons, UDM, Detroit Area Businesses, Restaurants, Community Colleges |
April 2014 | Tim’s MSA Shoe Awareness Campaign in Philadelphia, American Academy of Neurology Conference, St. Joseph’s Univ. |
July 2014 | Tim’s MSA Shoe Awareness Campaign in Washington, DC, Dysautonomia International Conference, Hotel Management |
July 2014 | Defeat MSA Takes On Global Administrator & Official Sponsor of Tim’s MSA Shoe |
August 2014 | Tim’s MSA Shoe External Website Created (Outside of Facebook) |
August 2014 | Tim’s MSA Shoe Brochure, Business Card and Letterhead Donation |
August 2014 | Revised JGF Brochure and Business Card Development Donation |
September 2014 | Tim’s MSA Shoe External Website Professional Development Donation – Verde Media, Inc. |
September 2014 | Tim’s MSA Shoe Committee Development |
October 2014 | MSA Coalition Annual Conference (Washington, DC), Tim’s MSA Shoe Represented |
October 2014 | MSA Shoe Incorporated and 501c3 Filing with IRS |
November 2014 | First Global MSA Research Meeting (Las Vegas, NV), Tim’s MSA Shoe Awareness Campaign in Vegas |
December 2014 | Shoe Renamed, MSA Shoe! |
January 2015 | MSA Shoe, Inc Approved As Non-Profit (501c3) |
February 2015 | MSA Shoe Website Revision (Donation: Verde Media, Inc) |
March 2015 | Inaugural Art Social Benefit (Cass Cafe, Detroit) |
March 2015 | MSA Shoe, Inc. |
Other Accomplishments:
Produced MSA Film: “It’s All in Your Head” Watch It Here
Participated in the First Global Research Roadmap Meeting (NV, 2014)
Added Toll-Free Patient and Caregiver Hotline: 1 855 542-5672
Sponsor of Two MSA Onsite Patient and Caregiver Support Groups
Opened Defeat MSA Ecommerce Store – Help Raise Research Funds By Buying A Defeat MSA Themed Product, Please Visit Our Store!
Sponsor of 20 Facebook MSA Patient and Caregiver Support Groups
Led Global Fundraiser for “A Day for Susana” – the 1st Full-Length Feature Documentary Film About World Champion Athlete and MSA Hero, Susana Schnarndorf. Visit Susana’s Wikipedia profile and Learn About Her Journey to the 2016 Paralympics in Rio, Brazil.
Represented Defeat MSA at several medical and patient conferences including the American Academy of Neurology, Dysautonomia International and International MSA Conferences.
We look forward to many more accomplishments moving forward in our efforts to Defeat MSA!
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